Bye Bye Xeloda

May 2019 with Mom and Steve (photo shooter) waiting to go in for my first surgery after TNBC diagnosis.

August 20, 2022. This was a big week. I had my PET/CT scans on Tuesday, and saw one of Dr. Rugo’s nurse practitioners, Gretchen, on Wednesday (Rugo participated via text messaging) to discuss next steps.

Based on the results of my scans, I’ve been taken off Xeloda. The good news is that my hands and feet can start healing…they’ve never been worse. And the other side effects I’ve been experiencing should start diminishing. The not so good news is that they took me off Xeloda because it isn’t working. The largest nodule in my right lung doubled in size and the number of additional nodules increased. As you can imagine, it was not the news we were hoping to hear.

I will start a new therapy in a few weeks after my oncology team determines which therapy (yes, we have options) might be the best weapon as we continue my war against recurrent metastatic TNBC (trip negative breast cancer). I will either be taking infusions (immunotherapy combined with chemotherapy), or a pill targeting a specific antigen.

Speaking of antigens, my tumor marker went up for the third blood draw in a row. It was 14.5 in April and then dropped to 11.8 in May. I thought perhaps I had rounded the curve. I expected June’s to be even lower. Wrong. In June it jumped to 16.5, and 18.2 this month. Clearly the Xeloda wasn’t working the way we had hoped.

So standby for next steps. You’ll know when I know.

In the meantime, I’m feeling good and enjoying life on the mountain, spending good times with family and friends.

Nurture your mind with great thoughts, for you will never go any higher than you think. — Benjamin Disraeli

7 Replies to “Bye Bye Xeloda”

  1. Getting rid of those awful side effects is very good news. We hope the next treatment will be very beneficial without yucky side effects. You are persevering as best as you know how. Glad you’re enjoying quality time with those who love you. Looking forward to seeing you next month. ❤️

    Liked by 1 person

  2. I’m saddened that you have had far too many set backs. My hope is that the next treatment is successful and that you catch the break you so deserve. I admire your strength and positivity. Love you so much sweet Lana! ❤️❤️❤️❤️

    Liked by 1 person

  3. Lana, you f-ing amaze me! After all you’ve done you still can say you’re feeling good and enjoying life on the mountain. Seriously, 10 points to Gryffyndor! Your face and your presence pass in my sphere of the universe I live in often.
    May the next cocktail have a good result!

    Liked by 1 person

  4. Lana,
    Hugs and prayers are being sent to you and your medical team and to Steve.

    Sallie (Steve’s cousin)
    please tell Steve I sent him an email, since he doesn’t check it very often.😊

    Liked by 1 person

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