Monday, April 22, 2019. I woke up thinking, “Tumor Board Day. I think they meet at 9a. Hopefully Rugo will call this afternoon but it will most likely be this evening because I’m sure her schedule will be filled with appointments. Hell, maybe she won’t call at all. Maybe she’ll have one of her NP’s call instead. What if they want me to do AC? What if they think the tumor is inoperable? What if… Okay. Stop it. Take a breath. Take two. Try to relax. She’ll call when she calls. I know Rugo is on my side on this. She’s going to advocate for surgery. I just have to get through today and tomorrow’s chemo, and then whatever happens, happens.”
It was before noon when my cell phone rang. It was a 415 area code. I answered, and it was Dr. Rugo. She said the tumor board agreed that surgery would be the next step in my treatment regimen. The MRI showed that the tumor has decreased in size significantly but it did not dissolve completely. If surgery didn’t get all the remnants, radiation might be an option. I told her that was exactly what we were hoping to hear. And she said, “Me, too!” She sounded relieved, an emotion she hadn’t expressed before. It made me feel happy that she felt the same way that I did. Relieved. She went on to say that Dr. Ewing would be calling to set an appointment for me to come in and talk with her about the surgery. I said, “Great. Thank you, Dr. Rugo. This is really good news.”
One more chemo, then a few weeks of recovery, then surgery, then recovery from that, then maybe radiation. Then…then I get my life back. I GET MY LIFE BACK!!!!!!!!!!!!!!!!!!
Tuesday, April 23, 2019. I wake up thinking, “It’s my last chemo day.” Number 14. And I thought the most I would do was 3. But guess what? It worked. The poison shrunk my tumor. It made it operable. That along with your healing thoughts and prayers and good wishes.
Steve and I left the house around 1030a for my 140p blood draw appointment. It was a gorgeous day. Not a lot of traffic. We rode in silence. Deep in our thoughts. Trying to wrap our brains around the fact that this really was my last infusion. My last one…ever. I don’t think I’m jinxing myself by saying that. It just helps me to believe that it’s true.
During our drive, Dr. Ewing’s scheduler Kim called to set an appointment for Friday at 1:30p. I asked if we could delay it a week since Fridays are my worst days after chemo, and I was having my last treatment today. She said, no problem and scheduled me for 1:20p on May 3.
Lovely Caroline did my blood draw. Caroline has been part of my treatment team since my very first chemo. She is a wealth of information and I was happy to have her be the one who drew my blood today. I love her accent. British. She is super competent…they all are. So she put the access line into my port, drew a couple vials of blood, taped me up, and then gave me a big hug in honor of my last chemo day. She’s awesome. Then I watched as she walked my blood over to the lab.
We had about 45 minutes to kill before my 240p infusion appointment. I had a couple questions I wanted to ask Em (Rugo’s super-star scheduler). So we went to the second floor. When I asked for her at the reception desk, Gabe said she was in the back, and he would give her a call. After a brief conversation, he let me know she was in the middle of something but would see me in a few minutes. It took longer than a few minutes, but when Em did come out and after a big hug, we sat down in the reception area to talk. I told her I had a couple questions the first was if I was still going to get an appointment to see Rugo on May 8, the second was when do I get my port out (it can be removed at the time of surgery), the third was do I need to get a blood draw when I see Dr. Ewing as Rugo requested (yes, Em would get it scheduled)?
Then she told me that my chemo for today had been cancelled. That my last chemo, was my last chemo. Not today, but the one on April 16. I couldn’t believe it. I was happy, of course. But I was expecting to have chemo. My mindset was just going through all the steps to get to chemo. Number 14. My last one. She said, “Aren’t you happy? You’re done with chemo.” I did a little two-handed fist pump and said, “No more chemo! Yeah! I’m just a little stunned.” I looked at Steve and said, “I mean we drove all the way down here for nothing.” Em said, “I’m sorry. I dropped the ball. I just saw the order to cancel today’s appointment right before I came out. Someone should have called you yesterday. Dr. Rugo didn’t say anything when she called.” I told her, “No, it never came up. We were just excited about the surgery news. I wish she had said something. I guess I need to go up and get this access line removed.” I stood up, and Em said, “I’ll go with you.” I looked at Steve and asked him to go to the car and get the gifts I’d brought for the oncology nurses. He said he’d meet us on the fifth floor.
To make the best use of what is in your power, take the rest as it happens. —Epictetus